Thursday, December 22, 2016
Merry Christmas from the Trisomy 13 Life Support Group
Our LivingwithTrisomy13.org Community wishes everyone
A Very Merry Christmas 2016 ~ Trisomy 13 LIFE
You can view the collage images in larger view on this thread within
the facebook group.
Be sure to watch the VIDEO
http://trisomy13life.blogspot.com/2016/12/perinatal-care-continuing-your.html
Back to School 2016 Trisomy 13 Life - A Living with Trisomy 13 Community
Trisomy 13 LIFE ~ A Livingwithtrisomy13.org Community
Back to School September 2016
To VIEW the photos in original size click to the facebook group
Be sure to watch the VIDEO
http://trisomy13life.blogspot.com/2016/12/perinatal-care-continuing-your.html
Friday, December 2, 2016
Perinatal Care - Continuing your Pregnancy - Evidence Supports Trisomy Care
A MUST watch! Neonatologist Dr. Martin McCaffrey, medical adviser to the International Trisomy 13/18 Alliance, speaks about his personal journey caring for newborns with T13/18 and how the evidence supports that doctors MUST change the way they care for these children. Please share with your networks, friends and medical providers.
Be sure to VIEW the Trisomy 13 LIFE facebook groups collage's sharing
Trisomy 13 Life Expectancy Trisomy 13 LIFE Blogspot
The Living with Trisomy 13 Community shares family experiences
and families offer support to each other since 2005
www.livingwithtrisomy13.org
Families and Professionals are encouraged to register with SOFT www.trisomy.org
Friday, September 23, 2016
Trisomy 13 LIFE Celebrates our Children and Families Summer Fun
Summer and Water 13 Fun 2016
To view the images in large view click to the Trisomy 13 LIFE facebook Group.
Look to the SOFT Website for the latest on Trisomy Research and Publications
SOFT Support Organization for Trisomy 18, 13 and Related Disorders
Trisomy.org
LIKE the Social Media areas associated with the Living with Trisomy 13 Community
Trisomy 13 LIFE
GROUP facebook.com/groups/Trisomy13
PAGE facebook.com/Trisomy13LIFE
BLOG Trisomy13Life.blogspot.com
TWITTER @trisomy13patau
twitter.com/trisomy13patau
Wednesday, June 29, 2016
Trisomy 13 LIFE Celebrates our Father's ~ Loving their child Living with Patau Syndrome.
The Trisomy 13 Life - Living with Trisomy 13 Community wishes a s Happy Father's Day to our Father's having children diagnosed with Trisomy 13 ~ Patau Syndrome.
Those caring for living children now and those with treasured memories.
Please feel free to add your Father and me photo in the comments if you missed submitting one.
To view the photos in LARGER View see the message thread.
Follow the RECENTLY ADDED Photos on this link below.
https://www.facebook.com/ groups/Trisomy13/permalink/ 10154339304591336/
Those caring for living children now and those with treasured memories.
Please feel free to add your Father and me photo in the comments if you missed submitting one.
To view the photos in LARGER View see the message thread.
Follow the RECENTLY ADDED Photos on this link below.
https://www.facebook.com/
Saturday, May 7, 2016
Happy Mother's Day from the Living with trisomy 13 Patau Syndrome Community
Happy Mother's Day to our many Trisomy 13 Mother's
Those caring for living children now and those with Treasure Memories. Please feel free to add your Mother and me photo in the comments if you missed submitting one.
A special Thank You to Shannon, Delainey's Mother for helping us put these collages together. Look forward to another in June for Father's Day.
www.LivingWithTrisomy13.org
Currently rolling to the facebook public support group.
Monday, April 18, 2016
Study - Patau Syndrome - Trisomy 13 survive longer with intensive treatment.
Tsukada, et al 2015 Better Prognosis in Newborns with Trisomy 13 Who Received Intensive Treatments: A Retrospective Study of 16 Patients . Cell Biochem Biophys. 2012 Jul; 63(3): 191–198. Published online 2012 Apr 10. doi: 10.1007/s12013-012-9355-0
The patients who received intensive treatments survived longer compared to the previous data. This study provides useful information concerning genetic counseling, especially from an ethical point of view, before providing intensive management to newborns with trisomy 13.
Subscribe to:
Posts (Atom)