Showing posts with label ‬ ‪Pataus Syndrome. Show all posts
Showing posts with label ‬ ‪Pataus Syndrome. Show all posts

Friday, December 2, 2016

Perinatal Care - Continuing your Pregnancy - Evidence Supports Trisomy Care



A MUST watch! Neonatologist Dr. Martin McCaffrey, medical adviser to the International Trisomy 13/18 Alliance, speaks about his personal journey caring for newborns with T13/18 and how the evidence supports that doctors MUST change the way they care for these children. Please share with your networks, friends and medical providers.

Be sure to VIEW the Trisomy 13 LIFE facebook groups collage's sharing
Trisomy 13 Life Expectancy Trisomy 13 LIFE Blogspot

The Living with Trisomy 13 Community shares family experiences
and families offer support to each other since 2005
www.livingwithtrisomy13.org 

Families and Professionals are encouraged to register with SOFT www.trisomy.org

Saturday, April 9, 2016

Dr Martin Mc Caffrey, Clinical Professor Neonatal-Perinatal Medicine, speaking on Perinatal Hospice


Published on Mar 31, 2016
DR. MARTIN MCCAFFREY, USA Clinical Professor in Neonatal-Perinatal Medicine at UNC Chapel Hill & Director PQCNC speaking at the Perinatal Conference on 30 January 2016 in Dublin. 

A wonderful much needed presentation on the current issues which face newly diagnosed trisomy 13 and 18 families. Professionals who care for these children would benefit by taking the time to view this well put together presentation. Please share with your social networks, friends and medical providers. https://www.youtube.com/watch?v=9_wmI0UQLEo

Perinatal Hospice Palliative Medical Symptoms Treatment Trisomy 13 Prognosis life expectancy
Cardiac Surgery Survival - Research that Matters