Dr Martin Mc Caffrey, Clinical Professor Neonatal-Perinatal Medicine, speaking on Perinatal Hospice

Published on Mar 31, 2016

DR. MARTIN MCCAFFREY, USA Clinical Professor in Neonatal-Perinatal Medicine at UNC Chapel Hill & Director PQCNC speaking at the Perinatal Conference on 30 January 2016 in Dublin. 

A wonderful much needed presentation on the current issues which face newly diagnosed trisomy 13 and 18 families. Professionals who care for these children would benefit by taking the time to view this well put together presentation. Please share with your social networks, friends and medical providers. https://www.youtube.com/watch?v=9_wmI0UQLEo

Perinatal Hospice Palliative Medical Symptoms Treatment Trisomy 13 Prognosis life expectancy
Cardiac Surgery Survival - Research that Matters

The Experience of Families With Children With Trisomy 13 and 18 in Social Networks- Full Article

Article - The Experience of Families with Children with Trisomy 13 and 18 in Social Networks 

Annie Janvier, MD, PhD, 

Barbara Farlow, BEng, MBA, and 

Benjamin S. Wilfond, MD

CONCLUSIONS: Parents who engage with parental support groups may discover an alternative positive description about children with T13-18. Disagreements about interventions may be the result of different interpretations between families and providers about the experiences of disabled children and their quality of life.