Embracing LIFE Trisomy 13 LIFE with Faith, Hope, Love brings Triumphant JOY

Trisomy 13 LIFE Wishes you a
Happy Valentine's Day 2017
Touching Hearts * Patau Syndrome LIFE
Daily Living Group Support https://www.facebook.com/groups/Trisomy13Facebook Page https://www.facebook.com/Trisomy13LIFE

Twitter https://twitter.com/trisomy13patau

Perinatal Care - Continuing your Pregnancy - Evidence Supports Trisomy Care

A MUST watch! Neonatologist Dr. Martin McCaffrey, medical adviser to the International Trisomy 13/18 Alliance, speaks about his personal journey caring for newborns with T13/18 and how the evidence supports that doctors MUST change the way they care for these children. Please share with your networks, friends and medical providers.

Be sure to VIEW the Trisomy 13 LIFE facebook groups collage's sharing
Trisomy 13 Life Expectancy Trisomy 13 LIFE Blogspot

The Living with Trisomy 13 Community shares family experiences
and families offer support to each other since 2005
www.livingwithtrisomy13.org 

Families and Professionals are encouraged to register with SOFT www.trisomy.org

Trisomy 13 LIFE Celebrates our Children and Families Summer Fun

              

Summer and Water 13 Fun 2016
To view the images in large view click to the Trisomy 13 LIFE  facebook Group.

Look to the SOFT Website for the latest on Trisomy Research and Publications
SOFT Support Organization for Trisomy 18, 13 and Related Disorders
Trisomy.org
LIKE the Social Media areas associated with the Living with Trisomy 13 Community
Trisomy 13 LIFE
GROUP facebook.com/groups/Trisomy13
PAGE facebook.com/Trisomy13LIFE
BLOG Trisomy13Life.blogspot.com
TWITTER @trisomy13patau
twitter.com/trisomy13patau

Trisomy 13 LIFE Celebrates our Father's ~ Loving their child Living with Patau Syndrome.

The Trisomy 13 Life - Living with Trisomy 13 Community wishes a s Happy Father's Day to our Father's having children diagnosed with Trisomy 13 ~ Patau Syndrome.
Those caring for living children now and those with treasured memories. 
Please feel free to add your Father and me photo in the comments if you missed submitting one. 
To view the photos in LARGER View see the message thread.

Follow the RECENTLY ADDED Photos on this link below.
https://www.facebook.com/groups/Trisomy13/permalink/10154339304591336/

Happy Mother's Day from the Living with trisomy 13 Patau Syndrome Community

Happy Mother's Day to our many Trisomy 13 Mother's 
Those caring for living children now and those with Treasure Memories. Please feel free to add your Mother and me photo in the comments if you missed submitting one. 

A special Thank You to Shannon, Delainey's Mother for helping us put these collages together. Look forward to another in June for Father's Day.


www.LivingWithTrisomy13.org 

Currently rolling to the facebook public support group.

Dr Martin Mc Caffrey, Clinical Professor Neonatal-Perinatal Medicine, speaking on Perinatal Hospice

Published on Mar 31, 2016

DR. MARTIN MCCAFFREY, USA Clinical Professor in Neonatal-Perinatal Medicine at UNC Chapel Hill & Director PQCNC speaking at the Perinatal Conference on 30 January 2016 in Dublin. 

A wonderful much needed presentation on the current issues which face newly diagnosed trisomy 13 and 18 families. Professionals who care for these children would benefit by taking the time to view this well put together presentation. Please share with your social networks, friends and medical providers. https://www.youtube.com/watch?v=9_wmI0UQLEo

Perinatal Hospice Palliative Medical Symptoms Treatment Trisomy 13 Prognosis life expectancy
Cardiac Surgery Survival - Research that Matters