Merry Christmas from the Trisomy 13 Life Support Group

Our LivingwithTrisomy13.org Community wishes everyone
A Very Merry Christmas 2016  ~ Trisomy 13 LIFE
You can view the collage images in larger view on this thread within
the facebook group.

Be sure to watch the VIDEO
http://trisomy13life.blogspot.com/2016/12/perinatal-care-continuing-your.html

Back to School 2016 Trisomy 13 Life - A Living with Trisomy 13 Community

Trisomy 13 LIFE ~ A Livingwithtrisomy13.org Community
Back to School September 2016
To VIEW the photos in original size click to the facebook group

Be sure to watch the VIDEO
http://trisomy13life.blogspot.com/2016/12/perinatal-care-continuing-your.html

Trisomy 13 LIFE Celebrates our Father's ~ Loving their child Living with Patau Syndrome.

The Trisomy 13 Life - Living with Trisomy 13 Community wishes a s Happy Father's Day to our Father's having children diagnosed with Trisomy 13 ~ Patau Syndrome.
Those caring for living children now and those with treasured memories. 
Please feel free to add your Father and me photo in the comments if you missed submitting one. 
To view the photos in LARGER View see the message thread.

Follow the RECENTLY ADDED Photos on this link below.
https://www.facebook.com/groups/Trisomy13/permalink/10154339304591336/

World Patau Syndrome Day - March 13th

World Patau Syndrome Day 2016 March 13th
Meet Our Families
Living with Trisomy 13
www.livingwithtrisomy13.org

Preborn, Prenatal, Living and Treasured Memories
Trisomy 13 Life Expectancy

Wearing Yellow for  

World Patau Syndrome Day
International - Global - World  

March 13th is Trisomy 13 Awareness Day

Collage of Trisomy 13 LIFE  fb group shared photos.

Treasured Memory and Living Children Families 

www.facebook.com/groups/Trisomy13
Twitter -  @trisomy13patau

World Patau Syndrome Day 2016

World Patau Syndrome Day 2016 
March 13th
Meet Our Families
 www.facebook.com/groups/Trisomy13 

Preborn, Prenatal, Living and Treasured Memories

SOFT USA Embrace the Journey Trisomy Awareness
Trisomy Awareness Cause facebook Page
View these Precious Children Profile images
View these Precious Children Cover banners

View more children living with trisomy 13, Patau Syndrome off the
Trisomy 13 LIFE facebook Group
~ A Living with Trisomy 13 Community ~
www.facebook.com/Trisomy13LIFE
and
SOFT's Support Organization for Trisomy facebook Group 
www.facebook.com/groups/TrisomySOFT

The Experience of Families With Children With Trisomy 13 and 18 in Social Networks- Full Article

Article - The Experience of Families with Children with Trisomy 13 and 18 in Social Networks 

Annie Janvier, MD, PhD, 

Barbara Farlow, BEng, MBA, and 

Benjamin S. Wilfond, MD

CONCLUSIONS: Parents who engage with parental support groups may discover an alternative positive description about children with T13-18. Disagreements about interventions may be the result of different interpretations between families and providers about the experiences of disabled children and their quality of life.

                                

Trisomy 13 LIFE 2015 ♥ Families Transformed By Love

Trisomy13 LIFE ♥ Facebook GROUP
www.facebook.com/groups/Trisomy13/

Trisomy 13 LIFE Facebook PAGE
www.facebook.com/Trisomy13LIFE

"We believe each new life is a precious miracle
and encourage growing in love
to embrace life
from conception to natural death."

Trisomy13LIFE families, through their own grief and pain, reach out to help others on this very unique journey with Trisomy 13. All these families have lived and are living with a Trisomy 13 diagnosis and the reality of how it changes lives. With Courage, Grace, and Hope they continue on. Experiencing the transformation of grief into “Thanksgiving JOY.”

This Trisomy13 Life Support group is specific to Trisomy 13.

Given a poor prenatal or at birth diagnosis of Trisomy 13, these
Families are Transforming their Grief into Thanksgiving JOY.
Blessed each day by sharing their trisomy experience and connecting with others
who share their unique life journey.