Caring for Infants with
Trisomy 13 or Trisomy 18
National Institute of Child Health and Human Development
Researchers also found that the timing of the diagnosis impacted the infant’s treatment plan. Physicians and families elected to limit intensive care in the delivery room in more than 90% of births when T13 or T18 was confirmed prenatally. Comparatively, in cases where the T13 or T18 was diagnosed after birth, more than 90% of infants initially received full intensive care in the delivery room.
www.nichd.nih.gov/research/science-advances/Pages/infant-care-trisomy1318.aspx
SOFT Support Organization for Trisomy 18, Trisomy 13 and Related Disorders
35 years of Support Resources
www.Trisomy.org
Trisomy 13 LIFE - Patau Syndrome Family & Professional Support Group
FB Page www.facebook.com/Trisomy13LIFE
FB Group www.facebook.com/groups/Trisomy13
