Showing posts with label Researchers. Show all posts
Showing posts with label Researchers. Show all posts

Monday, September 28, 2015

Caring for Infants with Trisomy 13 - Patau Syndrome from the National Institute of Child Health and Human Development


Caring for Infants with
Trisomy 13 or Trisomy 18

National Institute of Child Health and Human Development




Researchers also found that the timing of the diagnosis impacted the infant’s treatment plan. Physicians and families elected to limit intensive care in the delivery room in more than 90% of births when T13 or T18 was confirmed prenatally. Comparatively, in cases where the T13 or T18 was diagnosed after birth, more than 90% of infants initially received full intensive care in the delivery room.
www.nichd.nih.gov/research/science-advances/Pages/infant-care-trisomy1318.aspx

SOFT Support Organization for Trisomy 18, Trisomy 13 and Related Disorders
35 years of Support Resources
www.Trisomy.org 
Trisomy 13 LIFE - Patau Syndrome Family & Professional Support Group
FB Page       www.facebook.com/Trisomy13LIFE
FB Group     www.facebook.com/groups/Trisomy13