Showing posts with label health. Show all posts
Showing posts with label health. Show all posts

Wednesday, June 29, 2016

Trisomy 13 LIFE Celebrates our Father's ~ Loving their child Living with Patau Syndrome.

The Trisomy 13 Life - Living with Trisomy 13 Community wishes a s Happy Father's Day to our Father's having children diagnosed with Trisomy 13 ~ Patau Syndrome.
Those caring for living children now and those with treasured memories. 
Please feel free to add your Father and me photo in the comments if you missed submitting one. 
To view the photos in LARGER View see the message thread.

Follow the RECENTLY ADDED Photos on this link below.

https://www.facebook.com/groups/Trisomy13/permalink/10154339304591336/

Friday, February 5, 2016

Trisomy 13 Patau Syndrome Awareness



Josiah and Natalia were Celebrating Josiah's 6th birthday.
In 2016 Josiah is now 18 years old and Natalia will be 16 years old in Aug 2016.
Trisomy 13 Family Support on Trisomy 13 LIFE facebook Group
A livingwithtrisomy13 community
https://www.facebook.com/groups/TRISOMY13

Monday, September 28, 2015

Caring for Infants with Trisomy 13 - Patau Syndrome from the National Institute of Child Health and Human Development


Caring for Infants with
Trisomy 13 or Trisomy 18

National Institute of Child Health and Human Development




Researchers also found that the timing of the diagnosis impacted the infant’s treatment plan. Physicians and families elected to limit intensive care in the delivery room in more than 90% of births when T13 or T18 was confirmed prenatally. Comparatively, in cases where the T13 or T18 was diagnosed after birth, more than 90% of infants initially received full intensive care in the delivery room.
www.nichd.nih.gov/research/science-advances/Pages/infant-care-trisomy1318.aspx

SOFT Support Organization for Trisomy 18, Trisomy 13 and Related Disorders
35 years of Support Resources
www.Trisomy.org 
Trisomy 13 LIFE - Patau Syndrome Family & Professional Support Group
FB Page       www.facebook.com/Trisomy13LIFE
FB Group     www.facebook.com/groups/Trisomy13