Showing posts with label rare. Show all posts
Showing posts with label rare. Show all posts

Friday, December 2, 2016

Perinatal Care - Continuing your Pregnancy - Evidence Supports Trisomy Care



A MUST watch! Neonatologist Dr. Martin McCaffrey, medical adviser to the International Trisomy 13/18 Alliance, speaks about his personal journey caring for newborns with T13/18 and how the evidence supports that doctors MUST change the way they care for these children. Please share with your networks, friends and medical providers.

Be sure to VIEW the Trisomy 13 LIFE facebook groups collage's sharing
Trisomy 13 Life Expectancy Trisomy 13 LIFE Blogspot

The Living with Trisomy 13 Community shares family experiences
and families offer support to each other since 2005
www.livingwithtrisomy13.org 

Families and Professionals are encouraged to register with SOFT www.trisomy.org

Friday, February 5, 2016

Trisomy 13 Patau Syndrome Awareness



Josiah and Natalia were Celebrating Josiah's 6th birthday.
In 2016 Josiah is now 18 years old and Natalia will be 16 years old in Aug 2016.
Trisomy 13 Family Support on Trisomy 13 LIFE facebook Group
A livingwithtrisomy13 community
https://www.facebook.com/groups/TRISOMY13