Trisomy 13 LIFE Celebrates our Father's ~ Loving their child Living with Patau Syndrome.

The Trisomy 13 Life - Living with Trisomy 13 Community wishes a s Happy Father's Day to our Father's having children diagnosed with Trisomy 13 ~ Patau Syndrome.
Those caring for living children now and those with treasured memories. 
Please feel free to add your Father and me photo in the comments if you missed submitting one. 
To view the photos in LARGER View see the message thread.

Follow the RECENTLY ADDED Photos on this link below.
https://www.facebook.com/groups/Trisomy13/permalink/10154339304591336/

World Patau Syndrome Day - March 13th

World Patau Syndrome Day 2016 March 13th
Meet Our Families
Living with Trisomy 13
www.livingwithtrisomy13.org

Preborn, Prenatal, Living and Treasured Memories
Trisomy 13 Life Expectancy

Wearing Yellow for  

World Patau Syndrome Day
International - Global - World  

March 13th is Trisomy 13 Awareness Day

Collage of Trisomy 13 LIFE  fb group shared photos.

Treasured Memory and Living Children Families 

www.facebook.com/groups/Trisomy13
Twitter -  @trisomy13patau

The Experience of Families With Children With Trisomy 13 and 18 in Social Networks- Full Article

Article - The Experience of Families with Children with Trisomy 13 and 18 in Social Networks 

Annie Janvier, MD, PhD, 

Barbara Farlow, BEng, MBA, and 

Benjamin S. Wilfond, MD

CONCLUSIONS: Parents who engage with parental support groups may discover an alternative positive description about children with T13-18. Disagreements about interventions may be the result of different interpretations between families and providers about the experiences of disabled children and their quality of life.