Showing posts with label neonatal. Show all posts
Showing posts with label neonatal. Show all posts
Thursday, December 22, 2016
Merry Christmas from the Trisomy 13 Life Support Group
Our LivingwithTrisomy13.org Community wishes everyone
A Very Merry Christmas 2016 ~ Trisomy 13 LIFE
You can view the collage images in larger view on this thread within
the facebook group.
Be sure to watch the VIDEO
http://trisomy13life.blogspot.com/2016/12/perinatal-care-continuing-your.html
Sunday, September 27, 2015
The Experience of Families With Children With Trisomy 13 and 18 in Social Networks- Full Article
Article - The Experience of Families with Children with Trisomy 13 and 18 in Social Networks
CONCLUSIONS: Parents who engage with parental support groups may discover an alternative positive description about children with T13-18. Disagreements about interventions may be the result of different interpretations between families and providers about the experiences of disabled children and their quality of life.
Labels:
Edwards Syndrome,
eithics,
ethics,
families,
genetics,
healthcare,
infants,
life expectancy,
living,
medical,
meidcal,
neonatal,
patau syndrome,
screening,
study,
support,
testing,
trisomy 13,
Trisomy 18
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