Showing posts with label neonatal. Show all posts
Showing posts with label neonatal. Show all posts

Sunday, September 27, 2015

The Experience of Families With Children With Trisomy 13 and 18 in Social Networks- Full Article


Article - The Experience of Families with Children with Trisomy 13 and 18 in Social Networks 




  • Benjamin S. Wilfond, MD

  • CONCLUSIONS: Parents who engage with parental support groups may discover an alternative positive description about children with T13-18. Disagreements about interventions may be the result of different interpretations between families and providers about the experiences of disabled children and their quality of life.