Study - Patau Syndrome - Trisomy 13 survive longer with intensive treatment.

Tsukada, et al 2015 Better Prognosis in Newborns with Trisomy 13 Who Received Intensive Treatments: A Retrospective Study of 16 Patients . Cell Biochem Biophys. 2012 Jul; 63(3): 191–198. Published online 2012 Apr 10. doi: 10.1007/s12013-012-9355-0

The patients who received intensive treatments survived longer compared to the previous data. This study provides useful information concerning genetic counseling, especially from an ethical point of view, before providing intensive management to newborns with trisomy 13.

‪#‎Trisomy13‬ ‪#‎Prognosis‬ ‪#‎Intensivetreatment‬ ‪#‎Survival‬ ‪#‎Naturalhistory‬

Patau Pataus - Edward Edwards - Down Downs - What is the correct Trisomy Syndrome name?

Trisomy Syndromes named after the Physician who described the genetic disorder. A trisomy is a type of polysomy in which there are three instances of a particular chromosome, instead of the normal two. A trisomy is a type of aneuploidy
(an abnormal number of chromosomes). https://en.wikipedia.org/wiki/Trisomy Trisomy 13 Patau Syndrome https://en.wikipedia.org/wiki/Klaus_Patau

https://en.wikipedia.org/wiki/Patau_syndrome Trisomy 18 Edwards Syndrome https://en.wikipedia.org/wiki/John_H._Edwards https://en.wikipedia.org/wiki/Edwards_syndrome Trisomy 21 Down Syndrome https://en.wikipedia.org/wiki/John_Langdon_Down https://en.wikipedia.org/wiki/Down_syndrome The internet has many confused folks writing what they will...

Here the are correct terms for the trisomy 13, 18 and 21 Syndromes. Patau, Edwards and Down. Only Edwards has an S.
You'll see many switching these names up with and or without the S but the correct terms for these are - Patau Syndrome, Edwards Syndrome and Down Syndrome.

Dr Martin Mc Caffrey, Clinical Professor Neonatal-Perinatal Medicine, speaking on Perinatal Hospice

Published on Mar 31, 2016

DR. MARTIN MCCAFFREY, USA Clinical Professor in Neonatal-Perinatal Medicine at UNC Chapel Hill & Director PQCNC speaking at the Perinatal Conference on 30 January 2016 in Dublin. 

A wonderful much needed presentation on the current issues which face newly diagnosed trisomy 13 and 18 families. Professionals who care for these children would benefit by taking the time to view this well put together presentation. Please share with your social networks, friends and medical providers. https://www.youtube.com/watch?v=9_wmI0UQLEo

Perinatal Hospice Palliative Medical Symptoms Treatment Trisomy 13 Prognosis life expectancy
Cardiac Surgery Survival - Research that Matters

World Patau Syndrome Day - March 13th

World Patau Syndrome Day 2016 March 13th
Meet Our Families
Living with Trisomy 13
www.livingwithtrisomy13.org

Preborn, Prenatal, Living and Treasured Memories
Trisomy 13 Life Expectancy

Wearing Yellow for  

World Patau Syndrome Day
International - Global - World  

March 13th is Trisomy 13 Awareness Day

Collage of Trisomy 13 LIFE  fb group shared photos.

Treasured Memory and Living Children Families 

www.facebook.com/groups/Trisomy13
Twitter -  @trisomy13patau

World Patau Syndrome Day 2016

World Patau Syndrome Day 2016 
March 13th
Meet Our Families
 www.facebook.com/groups/Trisomy13 

Preborn, Prenatal, Living and Treasured Memories

SOFT USA Embrace the Journey Trisomy Awareness
Trisomy Awareness Cause facebook Page
View these Precious Children Profile images
View these Precious Children Cover banners

View more children living with trisomy 13, Patau Syndrome off the
Trisomy 13 LIFE facebook Group
~ A Living with Trisomy 13 Community ~
www.facebook.com/Trisomy13LIFE
and
SOFT's Support Organization for Trisomy facebook Group 
www.facebook.com/groups/TrisomySOFT

Trisomy 13 Patau Syndrome Awareness

Josiah and Natalia were Celebrating Josiah's 6th birthday.
In 2016 Josiah is now 18 years old and Natalia will be 16 years old in Aug 2016.
Trisomy 13 Family Support on Trisomy 13 LIFE facebook Group
A livingwithtrisomy13 community
https://www.facebook.com/groups/TRISOMY13

To every thing there is a season, and a time to every purpose under the heaven ~ Ecclesiastes 3:1-8

~ Season of Winter ~

To everything turn, turn, turn.

There is a season turn, turn, turn.

And a time to every purpose under heaven...

Video by the Byrds with Lyrics

https://www.youtube.com/watch?v=pKP4cfU28vM

UPDATE  2016  
Living with Trisomy 13 Families 

Sharing Patau Syndrome Daily LIFE
facebook Group returns to a PUBLIC Group

www.facebook.com/groups/Trisomy13

Treasured Memory Families Private Group

www.facebook.com/groups/Trisomy13.TreasuredMemoryAlbums